A New Ocular Phenotype Combining Juvenile Glaucoma and Doyne Honeycomb Retinal Dystrophy (Malattia Leventinese) due to a Novel EFEMP1 Pathogenic Variant


Por: Chacon-Camacho O.F., Ordaz-Robles T., Cid-García M.A., Yepes-Rodríguez O., Arce-González R., Martínez-Aguilar A., Zenteno J.C.

Publicada: 1 ene 2025 Ahead of Print: 1 sep 2024
Resumen:
Doyne honeycomb retinal dystrophy (DHRD), also termed malattia leventinese (MLVT), is a dominantly inherited ocular disease characterized by the progressive accumulation of macular and peripapillary drusenoid material beneath the retinal pigment epithelium in the Bruch membrane. In all affected individuals genetically characterized to date, DHRD/MLVT is caused by a single heterozygous p.Arg345Trp missense variant in the EGF-containing fibulin-like extracellular matrix protein 1, EFEMP1. Recently, pathogenic variants in the EFEMP1 gene have also been demonstrated in several families with juvenile or adult-onset hereditary isolated glaucoma. Here, we describe a family featuring a unique phenotype of juvenile glaucoma and DHRD/MLVT caused by a novel EFEMP1 variant. Our results expand both the ocular phenotype associated with EFEMP1 variants and the molecular spectrum causing DHRD by describing the first non-p.Arg345Trp EFEMP1 pathogenic allele. © 2024 The Author(s). American Journal of Medical Genetics Part A published by Wiley Periodicals LLC.

Filiaciones:
Chacon-Camacho O.F.:
 Department of Genetics, Institute of Ophthalmology “Conde de Valenciana”, Mexico, Mexico

 Laboratorio 5 Edificio A-4, Carrera de Médico Cirujano, Facultad de Estudios Superiores Iztacala, Universidad Nacional Autónoma de, Mexico, Mexico

Ordaz-Robles T.:
 Department of Genetics, Institute of Ophthalmology “Conde de Valenciana”, Mexico, Mexico

 Department of Genetics, Fundación Hospital Nuestra Señora de la Luz, Mexico, Mexico

Cid-García M.A.:
 Department of Genetics, Institute of Ophthalmology “Conde de Valenciana”, Mexico, Mexico

Yepes-Rodríguez O.:
 Hospital del Niño Dr. Rodolfo Nieto Padrón, Villahermosa, Mexico

 Instituto Oftavisión de Tulipan, Cunduacan, Mexico

Arce-González R.:
 Department of Genetics, Institute of Ophthalmology “Conde de Valenciana”, Mexico, Mexico

Martínez-Aguilar A.:
 Department of Genetics, Institute of Ophthalmology “Conde de Valenciana”, Mexico, Mexico

Zenteno J.C.:
 Department of Genetics, Institute of Ophthalmology “Conde de Valenciana”, Mexico, Mexico

 Biochemistry Department, Faculty of Medicine, National Autonomous University of Mexico, Mexico, Mexico

 Rare Diseases Diagnostic Unit, Faculty of Medicine, National Autonomous University of Mexico, Mexico, Mexico
ISSN: 15524825
Editorial
Wiley-Liss Inc., DIV JOHN WILEY & SONS INC, 111 RIVER ST, HOBOKEN, NJ 07030 USA, Estados Unidos America
Tipo de documento: Article
Volumen: 197 Número: 1
Páginas:
WOS Id: 001311168300001
ID de PubMed: 39264138
imagen hybrid, All Open Access; Hybrid Gold Open Access

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