Further definition of the proximal 19p13.3 microdeletion/microduplication syndrome and implication of PIAS4 as the major contributor


Por: Tenorio, Jair, Nevado, Julian, Gonzalez-Meneses, Antonio, Arias, Pedro, Dapia, Irene, Venegas-Vega, Carlos A., Calvente, Maria, Hernandez, Alicia, Landera, Leandro, Ramos, Sergio, Cigudosa, Juan Cruz, Perez-Jurado, Luis A., Lapunzina, Pablo, SOGRI Consortium

Publicada: 1 mar 2020
Resumen:
The proximal 19p13.3 microdeletion/microduplication (prox19p13.3del/dup) syndrome is a recently described disorder with common clinical features including developmental delay, intellectual disability, speech delay, facial dysmorphic features with ear defects, anomalies of the hands and feet, umbilical hernia and hypotonia. While deletions are associated with macrocephaly, patients with duplications have microcephaly. The smallest region of overlap in multiple patients (113.5 kb) included three genes and one pseudogene, with a suggested major role of PIAS4 in determination of the phenotype and head size in these patients. Here, we refine the prox19p13.3del/dup with four additional patients: two with microdeletions, one with microduplication and one family with single-nucleotide nonsense variant in PIAS4. The patient with the PIAS4 loss of function variant displayed a phenotype quite similar to deletion patients -including the macrocephaly and many other core features of the syndrome. Patient's SNV was inherited from her mother who is similarly affected. Thus, our data indicate that PIAS4 is a major contributor to the proximal 19p13.3del/dup syndrome phenotype. In summary, we report the first patient with a pathogenic variant in PIAS4- and three additional rearrangements at the proximal 19p13.3 locus. These observations add further evidence about the molecular basis of this microdeletion/microduplication syndrome.

Filiaciones:
Tenorio, Jair:
 Hosp Univ LaPaz UAM, Inst Genet Med & Mol INGEMM IdiPAZ, Madrid, Spain

 ISCIII, CIBERER, Ctr Invest Biomed Red Enfermedades Raras, Callede Melchor Fernandez Almagro, Madrid, Spain

 ITHACA European Reference Network, ERN ITHACA, Brussels, Belgium

Nevado, Julian:
 Hosp Univ LaPaz UAM, Inst Genet Med & Mol INGEMM IdiPAZ, Madrid, Spain

 ISCIII, CIBERER, Ctr Invest Biomed Red Enfermedades Raras, Callede Melchor Fernandez Almagro, Madrid, Spain

 ITHACA European Reference Network, ERN ITHACA, Brussels, Belgium

Gonzalez-Meneses, Antonio:
 Hosp Univ Virgen del Rocio, Dysmorphol & Metab Unit, Av Manuel Siurot, Seville, Spain

Arias, Pedro:
 Hosp Univ LaPaz UAM, Inst Genet Med & Mol INGEMM IdiPAZ, Madrid, Spain

 ISCIII, CIBERER, Ctr Invest Biomed Red Enfermedades Raras, Callede Melchor Fernandez Almagro, Madrid, Spain

Dapia, Irene:
 Hosp Univ LaPaz UAM, Inst Genet Med & Mol INGEMM IdiPAZ, Madrid, Spain

 ISCIII, CIBERER, Ctr Invest Biomed Red Enfermedades Raras, Callede Melchor Fernandez Almagro, Madrid, Spain

Venegas-Vega, Carlos A.:
 Hosp Gen Mexico City, Unidad Genet, Mexico City, DF, Mexico

 Univ Nacl Autonoma Mexico, Fac Med, Mexico City, DF, Mexico

Calvente, Maria:
 NIMGENETICS, C Faraday 7,Parque Cient Madrid, Madrid, Spain

Hernandez, Alicia:
 Hosp Univ LaPaz UAM, Inst Genet Med & Mol INGEMM IdiPAZ, Madrid, Spain

 ISCIII, CIBERER, Ctr Invest Biomed Red Enfermedades Raras, Callede Melchor Fernandez Almagro, Madrid, Spain

Landera, Leandro:
 Univ Fed Rio de Janeiro, Congenital Malformat Lab, Ave Carlos Chagas Filho, Rio De Janeiro, Brazil

Ramos, Sergio:
 Hosp Univ LaPaz UAM, Inst Genet Med & Mol INGEMM IdiPAZ, Madrid, Spain

 ISCIII, CIBERER, Ctr Invest Biomed Red Enfermedades Raras, Callede Melchor Fernandez Almagro, Madrid, Spain

Cigudosa, Juan Cruz:
 NIMGENETICS, C Faraday 7,Parque Cient Madrid, Madrid, Spain

Perez-Jurado, Luis A.:
 ISCIII, CIBERER, Ctr Invest Biomed Red Enfermedades Raras, Callede Melchor Fernandez Almagro, Madrid, Spain

 Univ Pompeu Fabra, Genet Unit, Barcelona, Spain

 IMIM Hosp del Mar, Barcelona, Spain

 Univ Adelaide, SAHMRI, Womens & Childrens Hosp, Adelaide, SA, Australia

Lapunzina, Pablo:
 Hosp Univ LaPaz UAM, Inst Genet Med & Mol INGEMM IdiPAZ, Madrid, Spain

 ISCIII, CIBERER, Ctr Invest Biomed Red Enfermedades Raras, Callede Melchor Fernandez Almagro, Madrid, Spain

 ITHACA European Reference Network, ERN ITHACA, Brussels, Belgium
ISSN: 00099163





CLINICAL GENETICS
Editorial
Blackwell Publishing Ltd, 9600 GARSINGTON RD, OXFORD OX4 2DQ, OXON, ENGLAND, Estados Unidos America
Tipo de documento: Article
Volumen: 97 Número: 3
Páginas: 467-476
WOS Id: 000508802600001
ID de PubMed: 31972898